We'd like to thank everyone who came out to the fundraiser or sent cards for Ezra! You lifted our spirits! We needed a night of fun, laughter and fellowship! Thank you!!
Monday was another rough day for Ezra. His tummy continues to fill up with air, which compresses his lungs and then he destats. We arrived at the hospital to find his room filled with a whole medical team. They tried trialling Ezra off the big cpap machine, called nippv, to just plain ol` cpap. It didn't go so well. Then they inserted a bigger tube down into his stomach to release the air. We are praying this works, because the alternative options carry too many risks.
Trying to continue on with "normal life", has been challenging. It's hard to even smile knowing our baby lies miles away and is facing so many struggles. While shopping at the store, we received a phone call from the Nenonatologist. Those calls always make our hearts sink. He just explained how Ezra was having a difficult day with the air in his belly. Immediately I feel the guilt of not being there with him. It's a fine balancing act of being mom to the kids at home and to our sweet baby at the hospital.
If you could specifically pray for Ezra's tummy we'd greatly appreciate it!
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