EZ,
You were doing so well the doctors moved down your cpap to a 6! I'm cautiously watching you and calling and checking on you often, making sure you are handling the change. Today you were working harder at breathing. I laid hands on you and just prayed God would bless you with slow deep breaths.
The doctor said you have a severe case of chronic lungs, which is so hard to hear. They say keeping you illness free and growing with good nutrition is the key to healing your lungs. You started a 30 calorie formula mix with milk today. Apparently they never use this high caloric formula in the NICU because it's taken them 2 days to find a distributor to buy it from.
Your brothers and sister made shirts with your picture on them. One says "my brother is a superhero!"
We love you! You are our little hero/miracle!
Xoxo,
Mom
P.S. Daddy calls you EZ. :-)
so so happy to hear that on the cpap . I pray for your family daily . My son Graham who just turned one who is a former 26 weeker also has cronic lung disease along with gi issues . it is scary and at times it still is scary . we also have a large family with our nicu baby being the youngest of 7. keep strong God will carry you through the hard times. and keep going strong Ezra . :)
ReplyDeleteLook at how far Ezra has come! He is truly a miracle.
ReplyDeleteWhat a cutie pie God has given you, especially with so few tubs coming off of him!! God is good. So glad to see things are getting progressively better!! Praying the going home date is quickly approaching, too.
ReplyDelete