128 days!

Sweet boy,

I think mommy finally hit the wall of desperation yesterday. I heard from other NICU moms `there will come a point in your journey where you'll just be fed up and done with the hospital`. After 128 days I'm just tired and want this over. I absolutely hate leaving your side. I hate the 2 hour car rides. I hate being separated as a family. This stinks and I want you home. Doctors no longer call and update mom. When I have a question, they won't even come talk to me. They'll relay back "it's the weekend and we don't talk to parents on the weekend." So apparently you can be uncomfortable on the weekend and nothing will be done. Ugh! Like I said, I'm sick of this place! I think you're sick of it too. Thru a phone tree I heard they will discuss surgery on Tuesday, hopefully getting you in by the end of the week. Let's pray it's true!

On a happier note, you are 7lb 8oz! 19inches long! When talking about your age we now say "you are 3 weeks adjusted" because you are 3 weeks past your due date. Even though you are 4 1/2 months old, you are truly only a newborn.  You are unrestricted with your bottle feedings! In the last 24 hours you have taken 6 full bottles and 2 half bottles. Once you reach full bottles for 48hrs, surgery done, and still on nasal cannula we can check outta here!!!!

We plead we only have days left here, not weeks! I love seeing your progress, and how far you have come! What a miracle you are!

Keep fighting! Love you!

Xoxo,
Mom